Postdrome

POSTDROME (aka. migraine hangover) is the last stage of a Migraine attack that some Migraineurs experience, once the headache pain has subsided. The postdrome symptoms may continue for several hours or even days. Symptoms of this postdrome may include:

• Fatigue
• Weakness
• Irritability
• Mood changes (e.g., anxious, depressed)
• Scalp tenderness
• Cognitive and concentration difficulties
• Feeling "hungover"
• Head pain

My postdrome experience really is feeling "hungover" from everything that having a Migraine attack entails, but I also have a medication hangover from the meds I take for my worst migraines. Having both of these at the same time is rough. It's taxing on my body, and my mind starts to wonder when the next attack will be. I think I experience all of the above symptoms, though I believe my irritability is worse during the prodrome phase. Even my hair hurts. It's incredibly exhausting.

I'd like to add that it's just as annoying to tell a Migraineur experiencing postdrome symptoms that you've also had hangovers... as it is to tell a Migraineneur that you get headaches, too. They're NOT the same! NOT even close to the same! Now, I've never actually had a hangover from drinking too much alcohol... but when you get a hangover from drinking too much, that's YOUR choice and YOUR mistake - if you don't want a hangover, don't drink so much... simple! Getting a hangover from a Migraine attack is out of a Migraineur's hands... we know it's coming, but there's nothing we can do to prevent it.

• Headache does NOT equal Migraine attack.
• Migraine hangover does NOT equal hangover from drinking too much alcohol.

Prodrome

I'm starting to recognize some signs that I might get a migraine (usually the following day or so)...

PRODROME (aka. premonitory phase, pre-headache) is the first stage of a Migraine attack (I've written about this further in Premonitory Symptoms, and more information can be found here and here). However, not all Migraineurs will experience this phase, and the Migraineurs that do may not experience it with each attack and/or may not recognize the often subtly symptoms / warning signs. Some symptoms of prodrome may include:

• Appetite changes and/or cravings
• Cognition and concentration difficulties (such as, having difficulty finding words and/or speaking)
• Cold extremities
• Bowel changes (e.g., constipation, diarrhea)
• Excitement / hyperactivity
• Mood changes (e.g., irritable, depressed, impatient)
• Fatigue
• Frequent urination
• Memory changes
• Weakness
• Excessive yawning

My prodrome experience includes most of the above: cravings (specifically for breakfast foods), frequent yawning, irritability, and / or being more talkative (maybe like an energy rush - not sure, since I've only just recently recognized this one). Closer to the head pain onset, I sometimes get mumbly in my communication, and my ears feel full and/or hot. I have a constant sinus congestion / post-nasal drip problem going on - could be a combination of allergies and something with my migraines... not sure.

I think that it's important to try NOT to jump to conclusions, when interacting with other people (I'm not good at this, in practice... but, I'm working on it). For example, relating to Migraineurs:

• Frequent yawning does NOT necessarily mean that someone is tired and/or bored.
• Cravings do NOT necessarily mean that someone is pregnant.
• Talkativeness does NOT necessarily mean that someone is cured or otherwise over the chronic illness.

Stormy Seas

Just a word of warning I'm dealing with a migraine (though it has eased up a bit for the time it took to write this post... now, it's returning), so this may or may not be coherent.

Two devotionals (they are short, and worth a read) from the blog, Inward/Outward, that I read have hit the nail on the head yesterday and today.

Yesterday's was titled, What Your Body Knows (by Patrice Vecchione). A portion of this short devotional really popped out at me:  "The body needs to relax to float. If you're stiff and afraid, the water will not hold you well and you'll flail and splash.... But if you have faith in the floating, faith in the water, alliances are made from that."

I have to say that I'm the one that either stiffens up or splashes and flails, in the midst of the storms of life. I don't relax / float well. I need to learn to trust more. To let go...

Today's is titled, First Lesson (by Phillip Booth). It is a great poem that fits how I'm feeling just perfectly. It ends with:

Remember when fear cramps your heart what I told you:
Lie gently and wide to the light-year stars,
Lie back and the sea will hold you.

The poem says to relax and lean back, allowing the sea to hold you. "A dead man's float is face down," but we are told to lie face-up in the midst of fear because we "will dive and swim soon enough."

When we find ourselves in the midst of stormy seas, the last thing we think to do is to relax. We instinctively tense up and fight against the waves... easily being overtaken with anxiety and fear. But, we can take refuge by anchoring ourselves to the solid rock of God.

I hear the tumult of the raging seas
as your waves and surging tides sweep over me.
But each day the Lord pours his unfailing love upon me,
and through each night I sing his songs,
praying to God who gives me life. 
Psalms 42:7-8 (NLT)

Our faith anchors our souls to the solid rock of God, so that, no matter what happens, our God will continue to provide for us (in His way and His time). "... Therefore, we who have fled to him for refuge can have great confidence as we hold to the hope that lies before us. This hope is a strong and trustworthy anchor for our souls. It leads us through the curtain into God’s inner sanctuary" (Hebrews 6:18-19, NLT).

So, regardless of how sunny or stormy our life may be, we are to "...trust in him at all times. Pour out your heart to him, for God is our refuge" (Psalms 62:8, NLT).

Okay, I'm signing off (for real, this time) because this migraine is worsening. I'm grateful I had the ability and short-term, minor relief to be able to write this post (regardless of how coherent it actually is). I'm holding the words of these devotionals and scripture close...

Migraine Pattern

I know I've been absent from the blog-o-sphere lately. I guess I just needed a break from it.

I've been dealing with my migraine pattern changing, yet again. After I had my neurostimulator implanted (December 2010), my migraines started coming in a new pattern, where I would have a chunk of "good" days and then a chunk of really bad days. My good days have progressively gotten better, but they seem to be random. The bad days are just as bad and frequent, but now they're coming one or two days at a time. So, I may have a good day, followed by a horrible day, followed by a day or two of migraine hangover / postdrome / recovery. So, it makes for an extremely bumpy ride.

It's taken me a few days to get this post written. Of course, just before I get it posted, the above-mentioned migraine pattern change was proven not to be lasting. I'm on day 3 of this migraine (I took my meds on day 1, and can't take any more until at least tomorrow because I've maxed out the days I can use it this week... not hard when the max is only 2), so I'm only online long enough to get this posted (I'm sick of having all of these "almost finished" posts hanging over my head). So, hopefully this one will pass soon, and I can return to both real life and the blogging world...

Neuro-Stim Procedure

The Doctors TV discussed the Neuro-Stim Procedure for Migraine treatment with Dr. Kenneth Reed today. If you follow this link, you can scroll to the bottom and watch 2 different videos from the show (Warning: the left one is pretty graphic). This is the procedure I had done in December 2010 (it was definitely surreal watching the video about what some of the things they did during my surgery).

More information can be found here. Also, the Reed Migraine Center has a website set up with more information, including upcoming Get Your Life Back seminars.

I Will... in 2012

I don't like making new year's resolutions. But, I think the new year is as good a time as any to take some time to pause for a moment... reviewing the previous year's ups and downs, and then to re-prioritize and commit to things you can do to improve your life in the coming year.

• I will do my daily journaling devotional - so far this has been very good for me. The devotional I have is very short per day, but it allows me to reflect on it and then journal about it. It's an easy step to get myself back into reading and writing more.
• I will express more gratitude - to God, others, and myself.
• I will develop a healthy sleep schedule - getting up and going to bed closer to the same times (and more reasonable) daily.
• I will write more frequently - for my blog, my journal, and my other writing endeavors.
• I will incorporate exercise into my daily routine, even if it's only stretching.
• I will maintain a healthy diet and cook more frequently - including trying new recipes.
• I will celebrate (rather than discount) the goals I reach and achievements I make, regardless of how "large or small" they are.
• I will continue to seek out the best treatment possible to help me manage my chronic pain.
• I will schedule a digital sabbatical (even if only for an hour or two at a time).
• I will use my "Something for Jesus to Do" (SFJTD) box to write out things that I need to turn over to God - once I write it out and place it into the box, it is out of my hands (just as I must let go of the worry to God, the piece of paper is to be completely released... I throw them away or burn them, as the box fills... without re-reading what I'd written).
• I will continue to find ways of being kinder to myself... learning coping strategies, treating myself with the same kindness I treat others, avoiding toxic relationships and disrespectful people, accepting that some days will be better than others (but keeping faith that the good days will come).
• I will apologize less for things that are out of my control - I'm really bad about this, especially with my husband.

But, most of all... I will continue to seek God with all of my heart (Jeremiah 29:11-13).

Kari Bailey at Patient Endurance poses these questions, as one pauses to consider life changes and priorities:

“What do you want your life to stand for this year? What purpose do you want to fulfill? What is most important in your life right now? Who and what are you going to give the majority of your time to this year? What is your vision for your immediate future? What are you hoping and dreaming God will do for you and your family this year? What do you want changed in your life? Where do you want to be this time next year?"

I love these questions, but they definitely call for more thought and attention than I have to give right now. I'm going to write them down, respond to each question, and then honestly assess my answers.

Blessings!