I've missed friends' weddings, family get-togethers, church services (I'm ashamed to say that I've only been a couple times this year), and various other events (big and small). I often have to change / adjust plans, even to do "normal" activities like going to the grocery store.
Jeremy and I have had to get used to the "winging it" that comes along with a chronic illness. I never know how I'm going to feel or how long I'm going to last. We both hate having to change / cancel plans with others, and / or make sure that other people understand that our plans could change at the last minute (they're pretty volatile). I think it's a guilty sort of feeling, though we may not label it or think of it as such. Even though we're getting used to this, we really hate when it starts affecting other people.
|"Life is about not knowing, having to change,|
taking the moment and making the best of it,
without knowing what's going to happen next."
- Gilda Radner