Showing posts with label anxiety. Show all posts
Showing posts with label anxiety. Show all posts

Saturday, December 21, 2024

A Look Back at 2023

It's the end of 2024. As I reflect on this year, I realize that I never posted about 2023. So, here it is. 
Note: I wrote this in December 2023.

I last posted about 2022 (and here's 2021). I may not always share an annual blog post. I don't want to place pressure on myself to write one. I'm allowing space for myself to do so, if it feels right. 

I closed out the year wanting 2023 to be "full of peace, calm, grace, and abundance. I want to flow through the challenges that will inevitably show up. I want to be present in moments of beauty and joy."
Photo by Priscilla Du Preez 🇨🇦 on Unsplash

My previous year's review offered a few questions to ponder. While they're good questions to ask about any chunk of time (a day, week, month, year, and so forth), the new year offers an opportunity to consider them for 2023.

What did you overcome this year?
I faced a lot of fear this year. I was strong and brave in ways that I haven't always noticed. I took chances and opened myself up in new safe spaces. 

This year, I made huge strides in changing the way I relate to myself and my emotions. 
  • I'm learning how to be more aware of and better identify and express my emotions. 
  • I'm learning more about what I need and want. 
  • I'm learning new ways to use my voice. 
  • I'm learning more about neural pathways and the relationship between my thoughts, emotions, and physical sensations. 
What brought you joy this year?
So much has brought me joy this year. I feel like I'm seeing things through clearer eyes, in some ways. Depression has loosened its grip on me, and life is brighter. 

I have a support system that has offered me safe presence, encouragement, feedback, and guidance. I love sharing space with these souls, even if it's mostly virtually. 

I have been able to spend time with people I love, in-person and virtually. I have been writing more, exploring new recipes, and taking more pictures of beauty.

What do you want next year to look like?
I want next year to be a time of growth and rest, consistency and change, depth and frivolity. I want there to be meaningful conversations, moments of joy, soulful connections. I want my days to be filled with creativity, love, and laughter. 

Questions for reflection (and sharing, if you'd like to). Feel free to adjust the timing to what feels right for you. Perhaps you want to consider these questions for a month, quarter, etc. 
  • What did you overcome this year?
  • What brought you joy this year?
  • What do you want next year to look like?
"Write it on your heart that every day is the best day in the year." - Ralph Waldo Emerson

Thursday, January 4, 2024

A Year in Review (2022)

Note: I wrote this in December 2022.

I don't always do a year in review sort of post, though I did in 2021. I was recently part of a writing group that prompted me to consider some questions about this year.
eberhard 🖐 grossgasteiger on Unsplash


This year has been an intense year. There has been a lot of deep sadness and grief. Depression has taken hold multiple times. Anxiety has spun me around more times than I can count. Pain remains my daily companion.

Through it all, God has remained faithful. I'm grateful for His provision, especially when I don't know what I need.

I have overcome a lot this year. I've made it through every single time that I wasn't sure I would. Every time. Every. Time. I will continue to make it through, even when I'm not sure how.

I did a lot of hard work this year. I tackled depression with TMS (transcranial magnetic stimulation), Ketamine, and therapy. I completed a 3-week intensive pain rehabilitation program. I consistently showed up for physical therapy, both in office and at home. I made it through pelvic trigger point injections and acupuncture. A lot of needles. A lot of pain. A lot of work.

I am a warrior. I’m tired of fighting, and I'm doing my best to find balance.

I still have a long way to go to get to where I want to be. Where I thought I would already be. I'm doing my best to accept where I am and continue working to get to where I want to be.

I spent time with family and friends this year, both virtually and in-person. I enjoyed moments of love and laughter.

I want next year to be full of peace, calm, grace, and abundance. I want to flow through the challenges that will inevitably show up. I want to be present in moments of beauty and joy.

Intentionally reflecting allows me to recognize how far I've come.
  • Writing about the obstacles that I overcame reminds me of my strength and resilience, and God's faithful provision.
  • Remembering the people and moments that brought me joy reminds me of all that I'm so very grateful for.
  • Looking forward to the coming year reminds me that there's space to grow and change, and that there's always hope.
Questions for reflection (and sharing, if you'd like to):
  • What did you overcome this year?
  • What brought you joy this year?
  • What do you want next year to look like?
"Year's end is neither an end nor a beginning but a going on, with all the wisdom that experience can instill in us." - Hal Borland

Sunday, September 10, 2023

Suicide Prevention Awareness

September is National Suicide Prevention Month. September 10 is World Suicide Prevention Day.
Photo by Thought Catalog on Unsplash

Suicide is something that hits close to home for so many people, yet we often don't talk about it. There is a lot of shame, guilt, and stigma associated with mental health and suicide. 

We need to talk about our mental health. 

I've shared some about my experiences with depression, anxiety, post-traumatic stress disorder (PTSD), panic attacks, grief, loss. It's all part of my journey and it's important to share so others know they're not alone. 

You're not alone.

My cousin died by suicide in 2020. It's a heartbreaking and complicated loss. The stigma around suicide affects how we process the loss and grieve. For me, I found that it's further complicated in light of experiencing deep depression and suicidal thoughts at various times in my own life. 

I do my best to speak about mental health, chronic illness, and suicide with honesty, vulnerability, and language that reduces the shame, guilt, and stigma associated with them. Life is hard enough without these piled on. 

You matter. You are enough. You are not alone.

*The following resources include additional information, support, and helplines*

Awareness
  • The American Foundation for Suicide Prevention (AFSP) highlights the Talk Away the Dark campaign: "There are countless ways you can help Talk Away the Dark by initiating open conversations about mental health; speaking up and making sure more people know what research reveals about how we can help prevent suicide; lighting the way for those in distress to feel comfortable asking for help; and knowing what to say to support survivors of suicide loss and provide them the care they need." 
About Suicide
Resources
Helplines
If you, or someone you know, is in suicidal crisis or emotional distress, please call the 988 Suicide & Crisis Lifeline (formerly known as the National Suicide Prevention Lifeline) at 988 or text TALK to 741741. For those that are deaf and hard of hearing, use your preferred relay service or dial 711 then 988.

Friday, December 16, 2022

Depression: An Update

Depression is hard. 

Photo by Greg Rosenke on Unsplash
That's true. And, yet, a huge understatement.

I can see ways that I've improved:
  • I can more readily spot the signs of depression worsening.
  • I have been growing my toolbox with ways to help me in battle.
  • I find myself reaching outside of myself more than I used to.
I'm trying to focus on those things, but the truth is that there's so much other stuff chattering in the background... that I'm right back where I've been time and time and time again. Like there's no way to not.

Over the years, I've experienced depression to varying degrees. It's always there, though the depth, intensity, and disruption vary. Each episode is a unique and ever-changing combination of depression, anxiety, and panic attacks... making it a moving target to identify and manage. 

I've been in a depressive cycle for nearly 4 years. There have been moments of sheer beauty and joy, but the lows have been just as impressive as the highs. 

Depression does its best to push those positive moments out of my memory, while latching on to the painful ones. I'm doing my best to allow the space to grieve the losses and experience the joys, both with the intensity that shows up.

I seem to have more recently turned a corner to experiencing the deep lows, but the highs feel dampened. This may be partly due to deep sadness and grief stacking atop the depression. It's too heavy. 

I'm so tired and weary. The daily battles feel like a permanent fixture in my life.

I'm not sure how to get through all of this... but, there is no other way but through. 

Update: I wrote the above some number of months ago. 

There have been ebbs and flows to my experience of depression. Sometimes, depression is in the background and things don't feel quite as heavy and dark. Other times, there's a sense of emptiness and it feels like there's a blanket over everything. It takes a lot of hard work and energy to try to allow and accept even the difficult moments. I'm trying.

"I’ve managed to live with and through Depression before and can do it again. And that is a truth Depression cannot dispel." - Marie Shanley (Mxiety)

Wednesday, August 10, 2022

Pain Wraps Us Tightly Into Ourselves

Pain wraps us tightly into ourselves.
Photo by Erik Kroon on Unsplash


I wrote these words a couple years ago. They have proven to be so true. I have seen and felt it in me. I have seen and felt it in others.

Physical pain. Mental pain. Emotional pain. Spiritual pain. Relational pain. All pain. 

When pain is acute and deep, focus tends to draw inward. Toward the hurt, pain, chaos within. 

It sometimes feels like there's no way out of the protective walls that shoot up when the brain thinks we are in danger. The truth is that those walls often close off the very people that are willing to help. 

"I started to build a home with all the walls I was putting up for myself, but when I was finished, I realized I had built a cage and didn’t make a key." - Lidia Longorio

I have worked for years to recognize and intentionally act in ways that counter the closing off that feels natural when pain hits hard. 

One way I do this is to reach out, when I feel myself closing off and turning inward. I do this through prayer and connecting with a friend. It doesn't always make an immediate notable difference for me, but I can usually notice that it positively impacts the person I reach out to... and it ultimately impacts me, too, even if it's delayed. 

My goal in reaching out is to connect. This sometimes involves sharing about my current struggles, but not always. Oftentimes, it's simply to let them know that I'm thinking of them. This is likely related to me feeling alone in that moment and wanting others to know that they're not. I find that true connection helps both individuals feel less alone. 

"Knowing that you're not alone really does make all the difference in the world." - Normani Hamilton

Sunday, January 2, 2022

A Year in Review, Kinda (2021)

I like things to be in order. I always have. Sometimes, it gets me locked into place and prevents me from starting or reaching out or sharing at all. It's more than ok to start from where you are... from where I am. That's where we are: now, this moment.

This year has included many health-related challenges, including a hospitalization, multiple infections,
major surgery, new symptoms, testing, imaging, new diagnoses. Oh my!

Photo by v2osk on Unsplash
I've faced a lot, made it through a lot, and learned a lot. 

I'm still going through a lot, processing through a lot, and focusing on healing a lot. 

A lot.

It's been nonstop.

Generally, my primary way of processing is through writing. It's how I move through life's ups and downs... especially the latter.

This year, though, my writing has been more focused on documenting what's going on, defining a bunch of new to me terms, and doing my best to wrap my mind around it all. The processing part has been tricky, as I've often been merely trying to get through one moment to the next. 

I want to write.
I want to process. 
I want to share.
I need to survive.

There are times that the physical side of recovery consumes all of my energy. That's compounded by trying to strike a balance of allowing the emotional aspects to ebb and flow, and not getting completely swept away by the waves of emotion. Physical pain is rarely experienced without an emotional impact, at least for me.

So, I write thoughts down. What that looks like varies: snippets of thoughts or ideas, a list of questions, prayers, words or songs that resonate with me, unedited raw emotion, a moment when dots suddenly connect... even a complete blog post.

Then, weeks and months (and, sometimes, years) pass by before I finish or share / post what I started writing in the midst of it all.

I know that it's ok. And, it can feel overwhelming.

I have to start somewhere. Somewhere is here. Now.

I'm struggling. On multiple fronts. 

There are times that it feels like there's no time, space, or energy to slow down to process something before another thing drops. 

I recognize that I'm in a season of needing to focus on my health and hurts. I know that it's important. Crucial, even. I know that it's what I need to do. And, it's really hard. 

I'm not comfortable with needing to focus on my stuff so intently, for so long. It's exhausting. 

I'm well-versed in managing and seeking support for the chronic illnesses I've had for years. Asking for and accepting help have been things I've gotten much better at over the years (Help: A Four-Letter Word). The trouble is, there's been so much new health stuff this year, and I don't yet know what help or support I need to ask for. 

It's frustrating to so frequently have something new, worse, and/or more going on with my health. I feel like I don't have much left to give to others... and, that... that is so hard.
I acknowledge that feeling it doesn't make it true. It's a self-judgment / critique. I truly believe that a poll of my people would show that I'm giving others love, support, care in multiple ways and that I am and have always been enough.
I'm also able to recognize that I've grown in how I handle and face uncertainty, change, loss, complexity. I'm still learning and growing, for sure. 

I don't know how things will look here on my blog moving forward. I plan to continue to use this space as a place to process and share. I think that might look like a combination of words I wrote in the moment and where I'm at in the process now. 

I'm looking forward to writing and sharing more of my journey. 

"No matter how big or small, allow yourself the chance to reflect on all of the things you've championed in the past year. You are allowed to feel proud of yourself." - Olimatta Taal

Friday, October 22, 2021

13 Years Later, Now

I recently posted Reflecting 12 Years Post Accident, which I wrote in 2020. Please feel free to click over and give it a read. While I don't post about it every year, I felt the need to, again, this year (2021).

Mixed emotions. That's how I feel, as the 13th anniversary of my car accident approaches. Each year hits a bit differently. It doesn't always affect me. I took the power of that date back several years ago. I know that the date isn't inherently bad... yet, I feel the weight of it a bit more this year.

Photo by Tengyart on Unsplash

This year, it makes sense why it's on my mind more.

On September 30, I woke with what I labeled a "sleeping injury." I had pain and limited range of motion in my right shoulder and neck. I joked about how ridiculous our bodies are, that I could hurt myself while in an unconscious state.

I figured it was simply a matter of sleeping weirdly and that it would dissipate in a few days.

It didn't.

The tightness, pain, limited range of motion worsened each day. I've tried: heat, ice, muscle relaxers, nsaids, theracane, lidocaine patch, gentle massaging and stretching.

My sleep and daily functioning are both being disrupted and limited. I want to write, but I'm having a difficult time physically doing so.

There's an emotional component to this pain, as well, as it's reminiscent of past trauma / pain.

I know that our minds are prone to distort or misremember things, including pain experiences. This is often compounded by time. Understanding all of that, there's still a familiarity with the pain and limited range of motion I've been experiencing.

I injured my neck and right shoulder in a 2008 car accident. While I don't fully remember a chunk of time after the accident, I remember pieces. One of those pieces is that there was a lot of pain and I was physically very limited in using my right arm and neck.

Two years after the car accident, I had a neurostimulator implanted (2010). I had a very long and difficult recovery, including severely limited range of motion in my neck.

I've been doing a good job recognizing the connection to these past traumas / events that my mind and body are making, and reminding myself that they are separate. The car accident isn't happening right now. I am safe. 

In light of current struggles, I'm being reminded:
  • Healing isn't linear - past grief, trauma, loss, challenges keep showing up. Each time they do, I do my best to feel it and process through.
  • I'm safe - it can be especially difficult to remember this, when there's such similarity in how I feel (physically and/or emotionally). 
  • I'll get through this, as I have previous challenges.
Update: I was seen by primary care on 10/5. I woke on the 13th anniversary day (10/10) with the first notable improvement in symptoms since they started. I'm so grateful for that. I have imaging and doctor appointments on the schedule to help determine the path forward.

Thursday, March 5, 2020

An Update & More Migrainous Musings

I have been struggling with a rough stretch of status migrainosus. I sometimes get flashes of clarity or expression, when I'm in the midst of deep distress... sometimes I'm able to capture the words, scribbling them down wherever I can. Last year, I shared some Migrainous Musings. I'm here, again, yet there's little comfort in the familiarity of this place. The timelessness and dominance of pain described in Pain has an Element of Blank continues to resonate and ring true to my own experience.

I continue to share, and hope you'll excuse the raw, unedited migrainous musings / ramblings of a brain in pain.

There's an emptiness inside me that knows no bounds.
Sometimes it tries to swallow me up.
Is it the pain? The anxiety? The depression?
Or is this emptiness me?

To know me truly,
See the darkness inside me,
Then don't turn and run.

The darkness surrounds.
Is it here to stay this time?
Please don't consume me.

I do not fear the darkness in others. I generally don't fear it in myself. But, there are times that it becomes overwhelming, and I can't see the light.

I feel like I'm disappearing. Shattering into tiny pieces and blowing away in the wind. Like I'm a fragile shell, being crushed by the weight of darkness. Do I still exist? What is left of me, when the pain overflows?

I'm not ok. I know I've been in this place before, and somehow come out the other side. But, that doesn't compute right now. This feels like my forever. Like I'm trapped.

Update 1 (March 3):

I've spent most of the last week in the hospital getting infusions to try to break this status migraine.


Six days. Three IVs. Loads of meds. My mind and body are still in turmoil, and I don't know how long it'll take to feel like me again. I've been here before. I know that I get out. But, I don't know how. It feels too hard. I feel too weak.

Update 2 (March 4):

Today is filled with more pain than I feel I can bear. I'm not sure how I can survive it. I've treated hard. I'm trying to give myself rest. Nothing feels enough. I know I'll get through it... somehow... because I always do. Every time. Yet, even that gives me no solace in this moment.

Update 3 (March 5):

I woke today feeling more me than I have in a long time. Pain levels are lower. My mind and body are so weary and I can feel the weight of the battles fought. But right now, in this moment, I'm praising God for His provision and the respite.

"At the end of the day, we can endure much more than we think we can." - Frida Kahlo

Thursday, January 31, 2019

Head Above Water

Music has always played an important part of my life journey. There are songs that touch my soul in unexpected ways by expressing a deep pain or angst, faith or hope... or a combination of the complexity we experience as humans.

Avril Lavigne's song, Head Above Water, captured me from the first time I heard it last fall. Apparently, the song stuck with me, and surfaced over the struggles of the last month because I've found myself singing the chorus at random moments.

She wrote this song during her own debilitating health struggles. The rawness and openness of her physical and emotional battles in the midst of a terrible storm is so powerful. It's a reminder that despite the storms and battles that we face in life, we can reach others, grow, and create something amazing.


Head Above Water by Avril Lavigne

I've gotta keep the calm before the storm
I don't want less, I don't want more
Must bar the windows and the doors
To keep me safe, to keep me warm

Yeah, my life is what I'm fighting for
Can't part the sea, can't reach the shore
And my voice becomes the driving force
I won't let this pull me overboard

[Chorus]
God, keep my head above water
Don't let me drown, it gets harder
I'll meet you there at the altar
As I fall down to my knees
Don't let me drown, drown, drown
Don't let me, don't let me, don't let me drown

So pull me up from down below
'Cause I'm underneath the undertow
Come dry me off and hold me close
I need you now, I need you most

[Chorus]
Don't let me drown, drown, drown
Keep my head above water, above water

And I can't see in the stormy weather
I can't seem to keep it all together
And I, I can't swim the ocean like this forever
And I can't breathe

God, keep my head above water
I lose my breath at the bottom
Come rescue me, I'll be waiting
I'm too young to fall asleep

[Chorus]

Tuesday, January 29, 2019

Checking In

I disappeared for a while, and I apologize. When I wrote Migrainous Musings, I was two weeks into an intense status migraine. Unfortunately, it persisted.

Following an unsuccessful round of corticosteroids, I completed a 3-day course of outpatient infusions. They brought it to a bit more manageable level, but it didn't help as much as they did last summer when I did them.

Photo by Kelly Sikkema on Unsplash
Then, I got sick. Deciphering whether head and face pain is from migraine or sinus pressure / mucus is tricky... much less how to treat it. A couple days in, the coughing started and made my asthma flare. Dealing with common sickness on top of chronic illness is unpleasant.

I've been doing my best to allow my mind and body the time and space to rest and heal, but it's hard.

Fatigue, depression, anxiety, insomnia from meds, boredom / difficulty distracting oneself... all on top of the ongoing pain and other symptoms.

I'm trying to complete what I can, when I can, how I can. Then, do my best to practice grace and compassion with myself.

"Give yourself the same compassion and grace that you give to the people in your life that you love the most." - Jennifer Rothschild

Thursday, January 3, 2019

Migrainous Musings

I have been struggling with a rough stretch of status migrainosus. When I'm thinking a little more clearly, I know that it will end... but when the pain levels are unbearable and the insomnia from treatment is added to the mix, night can bring out all kinds of demons (anxiety, depression, PTSD). In Pain has an Element of Blank, I wrote about the timelessness and dominance of pain, so this is something I've been facing and working on throughout the last 10 years.

This is part of my journey. Please excuse the raw, unfinished, unedited migrainous night musings / ramblings of a brain in pain; but I thought they might be worth sharing.

All alone, in the dark, is where the true torture happens. The incessant pain is magnified by the lies that it tells. When will it end feels like a question not worth asking. The pain decides without your consent.

Mind racing. Heart thumping, Head pounding, Body screaming.

The light of hope seems so soft and dim, but it's what holds us together when the night seems to never end.

Day in and day out, the pain becomes an unwelcome but constant companion. Sometimes it's there lurking in the shadows, sometimes it walks right along side of us, and sometimes it completely overtakes us.

Regardless of how wonderful a support network we have, there are moments that simply have to be faced alone. In the dead of night, when everyone is sleeping, the pain, anxiety, and isolation make their move.

Photo by Travis Bozeman on Unsplash
I've written several Haikus (and Tankas) previously in my journey, here and here. Sometimes it helps to try to focus my mind on thinking or writing in a specific way.

Darkness breeds darkness.
Incessant pain tells us lies.
We must seek the light.

We may feel alone,
But we never truly are.
Reach out and have faith.

Stark desert. Dark night.
Looking for a small reprieve
From the pain and fight.

“Be patient and tough; someday this pain will be useful to you.” - Ovid

Thursday, October 22, 2015

Heavy Baggage

I've always loved reading and learning. That hasn't changed. But, the time has come to unpack and face the heavy baggage of that love. Let me explain...

I have boxes upon boxes filled with books, binders, and notepads. They no longer seem to have a place in my life. Yet, I struggle immensely with even the thought of getting rid of them... as if, by doing so, it would somehow negate the knowledge and lessons I acquired through them.

One of the professors at my Alma Mater, University of Dallas (UD), said that the purpose of the school's intense Core Curriculum is to learn from many of the great thinkers, and then to formulate our own worldview. The UD website states that:
The Core is an opportunity to inquire into the fundamental aspects of being and our relationship with God, nature and our fellow human beings. The Core curriculum embodies the University of Dallas’ dedication to the pursuit of wisdom, truth and virtue as the proper and primary ends of education.
I feel like I've learned from every book, article, and class I've encountered. I may not have enjoyed or taken something from each one to add to my worldview, but each one taught me something. And, in that, it's difficult to dispose of them.

There's an added piece of the puzzle, though.

I envisioned a life where I would be a professor. I would conduct research, write papers and books, and teach students. I would be referring back to these books, and possibly to some of my notes (if only just to see how my perspective might have shifted over time). They would serve an important role in my life.

But, since my car accident (7 years ago!), a lot has changed. Many of these books have remained in boxes that entire time, while others have only been moved from boxes to bookshelves and back to boxes.

For the time that they were on the bookshelves, I would sometimes feel like they were a visual (and painful) reminder of how much in my life had changed. I haven't been able to read and write like prior to the accident. I felt like I had lost the ability to be a scholar, and that broke my heart.

I was cleaning one of our bedrooms yesterday... the one with half of the closet full of those many boxes of books, binders, and notepads. I felt my heart start to pound quickly in my chest, but I didn't have a panic attack. I'm taking that as a sign that it's time to try to deal with the boxes and the related emotions that will surface.

I'm not sure how to best face all of this, but I think it's time. I'm not going to just dump everything out. I'm going to go through the boxes (when hubby is here to help me safely move them from their resting place): carefully considering what to keep and what not to, thanking each of them for their service and place in my life, and then either donate, sell, or recycle.

I know that this is going to take some time, but it's time.

Friday, June 12, 2015

Birds of Hope

"Birds of Hope," Interpret the Quote: Tell us what the quote on the image below means to you.
You're welcome to use the image in your post as long as you don't make any changes to it.

This quote and image immediately brings a beautiful passage of scripture to mind:
Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life? 
And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. Yet I tell you that not even Solomon in all his splendor was dressed like one of these. If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ For the pagans run after all these things, and your heavenly Father knows that you need them. But seek first his kingdom and his righteousness, and all these things will be given to you as well. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. (Matthew 6:25-34)
Everything in nature is a beautiful echo and reminder of the greatness of our Father. God will provide even our most basic needs because we are His beloved children, made in His image.

What hope we have, when we trust and know that God will provide for our needs!

This doesn't mean, though, that we can just be passive. Plan ahead, work hard, pray fervently... You can have concern (doing what you can to help a situation) without worry (after doing what you can to help a situation, you refuse to leave the rest up to God).

Jesus doesn't want us to worry ("do not worry" appears three times in this passage); He wants us to be hopeful. Trust in God's faithfulness to sustain you, just as He has in the past. And, don't let the challenges of tomorrow weigh you down today - "worrying doesn’t rob tomorrow of its sorrow, it robs today of its strength." Don't worry, be hopeful.

If you'd like to read (there's also an option to listen, instead) more about Matthew 6:25-34: Lifestyles of the Content and Worry-Free.

The Migraine and Headache Awareness Month (MHAM) Blog Challenge is organized by the American Headache and Migraine Association.

Monday, September 15, 2014

Status Migrainosus: A Difficult Week

I'll warn you (and apologize) up-front, this post may be kind choppy...

This has been one of the worst pain weeks I've had in a long time. I've taken migraine and pain meds (maxed out) and rested a lot. My doctor prescribed a round of corticosteroids, which hasn't seemed to offer much relief.

Status migrainosus is basically a severe intensity migraine that is unremitting for more than 72 hours. Now, I have some degree of head pain every, single day. I have chronic migraine, which means that I have migraines 15+ days per month. And, yet, I get these status migraines that I seem to have no way to prepare for. I know, intellectually, that at some point the pain will break. But, it doesn't seem like it, in the midst of the pain, especially when nothing (meds, coping skills, etc) is offering any relief.

Sleep Disturbance
My sleep pattern is completely insane. Since this horrible stretch of migraine pain began, my hours slept per day (can't say per night because some nights were no sleep, but a nap during the day) have been:

  • 8.25 hours
  • 3.50 hours
  • 9.00 hours
  • 3.25 hours
  • 17.00 hours
  • 0.00 hours
  • 15.75 hours
Talk about out of whack! Hypersomnia intermixed with insomnia... quite a toxic combination.

Memory / Processing Problems
Early this week (day 2 of severe pain), my memory was so bad... it was scary! My mind wasn't working at all - I would forget what I was saying, mid-sentence. My difficulties with memory and processing hasn't been that bad in a long time, and it reminded me of some of the struggles I had following my car accident. Strangely, though, I was inspired (and somehow able) to write a blog post, start to finish - When Your Pain is Invisible: You Look So Good. Honestly, I sometimes have more inspiration to write, when I'm at my low (not lowest) points... in the darkness... it's weird.

Irritability
I know that I've been extremely irritable, and not doing a very good job of filtering it. I've found myself snapping easily. It seems uncontrollable, out of my hands. I'm easily frustrated and/or annoyed by the dog, my husband, anything, everything, nothing...

Visual Disturbances
The visual issues I've faced with this migraine attack have been expansive. Aura, blurry vision, trouble focusing, see flashing lights (in all different lighting, from a dark room to bright outside).

And More...
If all of that wasn't enough, there have been so many other symptoms (many more than I'd like to write here)... aphasia, allodynia, hypersensitivity, vertigo, anxiety, depression, fatigue, and the list goes on...

Oh Yeah, Head Pain
If you noticed, I didn't even really mention the incessant head pain, and the neck and back stiffness and pain. The horrendous and unceasing nature of the pain has been paramount in my week... I can't seem to find relief.

Grateful
I will say, though, that I'm grateful to have been able to spend a little time out at a friend's (wedding) couples shower Saturday evening, and with my Mom to visit my grandmother in the hospital Sunday evening. I can't say that it didn't take a lot out of me, or even that it really even distracted me from the pain, but I'm glad that I could be there for those that I care about.

Monday, September 1, 2014

The Battle for Sleep Continues

I've written about my My Ongoing Battle of Sleep before. Unfortunately, the battle continues.

My sleep has been a huge obstacle and struggle lately, even moreso than normal... which is really saying something. I'm not sure exactly why, though I know that pain, anxiety, depression, and some of my as-needed migraine meds all play a role.

Making things more frustrating, I can be dozing off on the sofa (to the point that I can't keep my eyes open)... but, by the time I get to the bed, I struggle to get to sleep.

It's been worsening quite a bit over the past month. I'm almost on an opposite sleep schedule - getting to sleep around the time most people are getting up for the day, and sleeping into the afternoon.

I've tried different meds, essential oils, hot showers, hot/cold packs, a lot of the typical "sleep hygiene" ideas, etc. I keep trying to go to bed at a more normal time, but I sometimes find myself so restless that I could hardly stand it. So, I'm trying to get my body back on track... it's a wearisome journey.

Monday, August 18, 2014

The Dark Duo, Continued (4/9/14)

Here are some other thoughts from April 2014.

This post was written 4/9/2014:

How am I supposed to keep from feeling defeated, when so much of what I try to do defeats me.

Picking weeds (because our yard looks ridiculous)... I know that it's hard work, so I've been pacing myself and doing a little bit every day or two. But, I can't seem to get a handle on it. What's worse is that I'm struggling to physically be able to do it, even for short periods of time. I don't like feeling like I can't do something, so I continue plugging away a little at a time... but, it's not working. It's just making me feel worse about myself. My spirit is willing, but my body isn't able. And, I don't know what to do with that.

This post was written 4/6/2014:

The words of the enemy have been eating away at me, no matter how hard I try to stop them. I struggle to find anything of meaning to do in my life. Hearing the eulogy at my grandmother's funeral (in February) made me think how little there would be to say at my own. I know that's dark, but that's where I am right now. 

The enemy tells me that I don't and can't do anything meaningful. And, I feel like I can't argue with him. While I'd love nothing more than to prove him wrong, I don't know how to. I don't have the energy or the mindset to fight right now. 

So, I'm trying to remind myself (and God has placed angels in my life to remind me) that I have the King of Kings, the Lord of lords, the God of angel armies, fighting for me... that my Lord will provide the strength I need.

But, the enemy just gets louder.

The Dark Duo: Anxiety & Depression (4/9/14)

I can't believe that it's been so long since I've posted anything here on my blog. I finally sat down to take a look at what I've started writing, and came across several things I started back in April. I'm not in the same place as I was then, but I'm still struggling a lot with depression, anxiety, and pain. I'm going to try to get back to writing, and I feel like posting these things (even if some of them are incomplete) that I wrote several months ago will give me a start.

This post was written 4/9/2014:

I've been away for a long time, and though I'm ready to come out of the darkness I've been entrenched in, I don't really know how to... But, I have to try.

Honestly, the last few months are somewhat of a blur... in some ways, the anxiety and depression feel like they've been all but consuming me for so very long... but, the calendar tells me otherwise. But, that's what the dark duo does. It blurs and twists reality.

I haven't talked much about my experiences with depression... or, maybe I have. I don't really remember. I know I've shared some about my struggles with anxiety. It's hard to put into words. I've tried writing in my hand-written journal a few times over the last few months, as a way to get some of the internal struggle out; but panic attacks put a quick stop to that.

Being completely honest, I've been lost.

I have felt so much over the last few months... and, yet, so little. I've felt the weight of everything, indifference to everything, great sadness, complete helplessness.

Just a quick update on some things that have happened:
  • One of my grandmothers passed away.
  • My husband has been to (and currently is in) Afghanistan for work.
  • Botox was tried twice and failed.
  • Another treatment option brought on such side effects that it brought back fears of losing the weight I've (finally) gained back.
My list of blessings is long, but here are some:
  • My Lord has carried me through everything.
  • My husband continues to be the most loving and supportive person in my life.
  • My family has helped support me, especially when my husband isn't physically here to do so.
  • I've gained back the weight I've lost and struggled to gain back over the last 5 years (finally back to pre-accident weight).
  • I've reached out, when I didn't know that I could (and I have a couple cheerleaders that help me celebrate the victories / successes, like this, that are bigger steps than they seem - thank you!).
  • I've taken care of myself, the dogs, and the house, while Jeremy has been out of the country.
  • I had an amazing time with loved ones for several days around my birthday last weekend - I truly enjoyed myself.
I'm going to try to start writing again. I'll forewarn that I'm still in a pretty bad place, in general (it's not 100% of the time, but I tend to feel the need and pouring of words in some of my darkest and most painful times... so, that's when I write). I want and need to be open and honest about the pain and emotions I'm having (especially the ones I try so hard to hide from the world), so it may be rough going for a while. My hope is that by sharing them, I can take some of their hold and power away.
Disclaimer: Nothing on this blog is intended as medical or legal advice.

What I write on this site is my own, and if it is someone else's, I take special care to attribute it to the original author. So, please don't use any of my material without proper attribution or permission. Thanks.