Showing posts with label faith. Show all posts
Showing posts with label faith. Show all posts

Thursday, January 4, 2024

A Year in Review (2022)

Note: I wrote this in December 2022.

I don't always do a year in review sort of post, though I did in 2021. I was recently part of a writing group that prompted me to consider some questions about this year.
eberhard 🖐 grossgasteiger on Unsplash


This year has been an intense year. There has been a lot of deep sadness and grief. Depression has taken hold multiple times. Anxiety has spun me around more times than I can count. Pain remains my daily companion.

Through it all, God has remained faithful. I'm grateful for His provision, especially when I don't know what I need.

I have overcome a lot this year. I've made it through every single time that I wasn't sure I would. Every time. Every. Time. I will continue to make it through, even when I'm not sure how.

I did a lot of hard work this year. I tackled depression with TMS (transcranial magnetic stimulation), Ketamine, and therapy. I completed a 3-week intensive pain rehabilitation program. I consistently showed up for physical therapy, both in office and at home. I made it through pelvic trigger point injections and acupuncture. A lot of needles. A lot of pain. A lot of work.

I am a warrior. I’m tired of fighting, and I'm doing my best to find balance.

I still have a long way to go to get to where I want to be. Where I thought I would already be. I'm doing my best to accept where I am and continue working to get to where I want to be.

I spent time with family and friends this year, both virtually and in-person. I enjoyed moments of love and laughter.

I want next year to be full of peace, calm, grace, and abundance. I want to flow through the challenges that will inevitably show up. I want to be present in moments of beauty and joy.

Intentionally reflecting allows me to recognize how far I've come.
  • Writing about the obstacles that I overcame reminds me of my strength and resilience, and God's faithful provision.
  • Remembering the people and moments that brought me joy reminds me of all that I'm so very grateful for.
  • Looking forward to the coming year reminds me that there's space to grow and change, and that there's always hope.
Questions for reflection (and sharing, if you'd like to):
  • What did you overcome this year?
  • What brought you joy this year?
  • What do you want next year to look like?
"Year's end is neither an end nor a beginning but a going on, with all the wisdom that experience can instill in us." - Hal Borland

Saturday, October 21, 2023

A Letter to Myself

It's been 15 years since I was in a car accident that altered the trajectory of my life. I've written and posted about it multiple times over the years. Each time differs, as the grieving and healing processes continue. 
Note: links to previous posts about the anniversary of the car accident at the end of this post.

This year feels different. 

The past year has included a Pain Rehabilitation Center (PRC) program, Emotional Awareness and Expression Therapy (EAET) course, and attending a writing support group, all of which have provided me resources and opportunities to make important changes in my life and within myself. I will share more about these in future posts. 

Today, I want to share a letter I wrote to myself. I've written multiple different letters to myself over time. These letters offer compassion, guidance, and encouragement to myself, reminding me that I can and will make it through whatever hard thing I'm facing. They serve as a gentle guide, map, or light for me to get through the difficult times. Here is one such letter. 

My dear self,
I know you’re struggling and your heart feels heavy. Pause and take a breath. 
Feel the air come in through your nose and out through your mouth. Notice how that feels in the body. 
You are going to get through this, just as you have every hard thing before. 
Breathe. 
Rest. 
Identify and acknowledge the emotions and core beliefs that come up. 
Be gentle with yourself. 
Write. Writing helps to gain clarity and release hurt better than anything else. 
Pray. Ask God to come alongside you and provide what you need in each moment. He is faithful. 
Reach out. Jeremy is your strongest supporter in life. Allow him, and others, to be there for you. 
Use the skills and tools you’ve learned and strengthened over the years: breathing, healthy coping and distraction, and resilience. 
You are so resilient! You persevere through challenges. You are a warrior. 
Listen to music. Look for beauty. Bake a cake. Play a game. Write, write, write. 
Do these to help you feel like you again. 
Breathe and let go of what you’re able to. 
I’m so proud of you! I'm proud of you for never giving up, for doing the hard work, for always holding onto hope as well as you were able. 
Keep going, you’ve got this.
Love, Me

Photo by Jamie Valendy
I wrote this letter during the PRC program in 2022. I wrote it on October 10. That day has a history of pain and redemption, over the years.
  • It was the day that I was in a car accident that changed my life. 
  • It was the day that I started seeing my amazing headache specialist.
  • It was the day that I wrote this letter to myself and graduated from a pain rehabilitation program. 
A lot has changed in the past 15 years. I have picked up the pieces of a shattered life, more than once, and chosen what to keep and what to let go of. I have fought battles within (and out) that few or no one knows about. I have worked hard to become the person I am, and I will continue to keep (re)building and growing. 

I've got this!

If you'd like to listen to me read this letter, you can! I was asked to share on a recent US Pain Foundation Building Your Toolbox talk about the importance of writing. Click here to listen on YouTube (https://youtu.be/AolqG1FvoUw). I read at 24:00.

Friday, October 22, 2021

13 Years Later, Now

I recently posted Reflecting 12 Years Post Accident, which I wrote in 2020. Please feel free to click over and give it a read. While I don't post about it every year, I felt the need to, again, this year (2021).

Mixed emotions. That's how I feel, as the 13th anniversary of my car accident approaches. Each year hits a bit differently. It doesn't always affect me. I took the power of that date back several years ago. I know that the date isn't inherently bad... yet, I feel the weight of it a bit more this year.

Photo by Tengyart on Unsplash

This year, it makes sense why it's on my mind more.

On September 30, I woke with what I labeled a "sleeping injury." I had pain and limited range of motion in my right shoulder and neck. I joked about how ridiculous our bodies are, that I could hurt myself while in an unconscious state.

I figured it was simply a matter of sleeping weirdly and that it would dissipate in a few days.

It didn't.

The tightness, pain, limited range of motion worsened each day. I've tried: heat, ice, muscle relaxers, nsaids, theracane, lidocaine patch, gentle massaging and stretching.

My sleep and daily functioning are both being disrupted and limited. I want to write, but I'm having a difficult time physically doing so.

There's an emotional component to this pain, as well, as it's reminiscent of past trauma / pain.

I know that our minds are prone to distort or misremember things, including pain experiences. This is often compounded by time. Understanding all of that, there's still a familiarity with the pain and limited range of motion I've been experiencing.

I injured my neck and right shoulder in a 2008 car accident. While I don't fully remember a chunk of time after the accident, I remember pieces. One of those pieces is that there was a lot of pain and I was physically very limited in using my right arm and neck.

Two years after the car accident, I had a neurostimulator implanted (2010). I had a very long and difficult recovery, including severely limited range of motion in my neck.

I've been doing a good job recognizing the connection to these past traumas / events that my mind and body are making, and reminding myself that they are separate. The car accident isn't happening right now. I am safe. 

In light of current struggles, I'm being reminded:
  • Healing isn't linear - past grief, trauma, loss, challenges keep showing up. Each time they do, I do my best to feel it and process through.
  • I'm safe - it can be especially difficult to remember this, when there's such similarity in how I feel (physically and/or emotionally). 
  • I'll get through this, as I have previous challenges.
Update: I was seen by primary care on 10/5. I woke on the 13th anniversary day (10/10) with the first notable improvement in symptoms since they started. I'm so grateful for that. I have imaging and doctor appointments on the schedule to help determine the path forward.

Monday, January 18, 2021

In Loving Memory of Jordan Conkle

*Sensitive Topic / Trigger Warning: death, suicide

My cousin, Jordan Conkle, died from depression by suicide on November 3rd. 

Loss and grief are part of the human experience, happening in a multitude of different ways throughout our lives. It's never easy. Processing tragic, devastating losses is really hard. I want to share some things that I’ve written, as I've tried to wrap my mind around this loss. It may be a bit bumpy, but grieving is rarely smooth sailing. 

In the Moment
Today started like any other. When I checked my phone, however, I had a missed call and voicemail, overnight. I listened to it and reached out via message to find out more. It was about Jordan, but that's all I knew. I didn't feel up to a phone call, but my anxiety nagged at me, so I texted my sister in law to see if she knew what was going on and if Jordan was alright. She immediately called me. Ok, so it's something that takes explanation. My mind didn't immediately jump to the worst (which is actually an improvement for me). 

Then, she said the words. The words that made everything spin and stop at the same time. 

Jordan ended his life last night.
What?
She repeated it.
I started to collapse down and lose it. Jeremy caught me and helped me safely down to the ground. 
I think I whispered, "Jordan's gone," in disbelief.

There is no good way to find this type of thing out. That said, I'm grateful for the family member that reached out during the night and for my sister in law. She was direct with telling me what happened, and was a soft and safe place for me to experience the initial shock and wave of emotions. I'll always be thankful for her love and care in such a heartbreaking moment.

Thoughts Day-of
Today, I found out that my cousin ended his life last night. I don't know how to wrap my mind around this.

Losing someone is hard. The circumstances around the loss, I find, can magnify different parts of the grieving process. You still must travel through the stages, in whatever order they present and re-present, but some come up more or are more pronounced.

This year, I've lost two people, both completely unexpectedly. I knew losing people would happen. It's part of being human. I wasn't prepared for the losses to strike so soon to people in their 30s, like I am. It's so hard to process, on multiple levels.

I don't want to sit in it, but I've been in the depths of depression. I know how bad that place is, and I'm so grateful that I've gotten out. I know others that have been in that place, too. We live with deep depression. There's a knowing that only people that have experienced that type of depth can have, even though everyone's experience is unique. I try to support those I can, in the ways that I can. They ultimately have to get out of the pit, but I can sit with them and shine a light for them when they're surrounded by darkness. 

I woke today, wishing it had only been a bad dream. It isn't, and that is crushing.

Memorial Service
The memorial service for Jordan was held in-person in Texas, followed by a graveside service. They streamed the memorial service on the church's social media. My sister and I were able to FaceTime and watch together. 

I attended a virtual memorial service earlier this year, but this one felt different. We weren't in Zoom rooms watching the service together. It felt like everyone was gathered together, and we were watching from afar. There was a disconnect. 

During the service, I learned that Jordan's favorite worship song was Here I Am to Worship. Jordan was someone who lived and loved big, and he's deeply missed by many.

I'm grateful for conversations with loved ones, both those also grieving the loss and those supporting me in my grief. I'm grateful for my cousins, who reached out and connected. I'm grateful that my sister and I were able to watch the service and be with one another in the ways we were able. I know that there will be waves of processing and grieving, much of which is done alone. I'm so grateful to have people that love and care surrounding me, who will support me however they can.

The Following Months
The holidays were filled with a lot of different emotions, for a lot of different reasons. In light of a loss in the family, my mind fluttered through memories, specifically those of growing up so close with my cousins. 

On Thanksgiving evening, I began to miss more... our big family Thanksgiving get togethers. Kristin and Jordan would get there later in the day and we'd play games. 

As Christmas approached, I felt the missing grow. Missing out being with family and friends, especially in light of a pandemic and unexpected family loss. I had dream(s) that included PaPa and Jordan, two family losses in as many years. I knew in the dreams that they're no longer with us, but they were special all the same. The one that Jordan was in: I think we were gathered as a family trying to watch his funeral service or something. Jordan came to me. He was younger. And we hugged, the way he did. 

I continue to give myself space to process. I wrote, "Jordan, it's Christmas Eve. We used to spend every one of them together (as we grew older, it was the weekend before Christmas). We would be eating, laughing, opening gifts, sneaking off to play with our gifts as the adults talk."

It's interesting the things we remember. I have tons of memories with Jordan, but many of them are simple moments. The silly grin on his face, his facial expressions, the way he hugged and laughed and smiled. 

As I've been processing, it's clear that we don't always remember the details of a memory or moment. That's ok. We can remember and hold onto how we felt in that person's company or presence. Love, laughter, comfort, calm, joy. All of these are so precious. 

Letter to Jordan
Jordan,
How can you not be here anymore? It's so hard to make sense of this world not having you in it. I know that we haven't kept in touch. But, you always have a place in my heart. I cherish the memories of all of us throughout the years. Watching Milan, playing games, playing pool, dressing you up, going to car shows, monthly family birthday get togethers, Thanksgiving at my parents' house, Christmas at your parents' house... I'm grateful that we were able to have that time together. 

We last saw each other in November 2019 at Grandma's 80th birthday party. When you were leaving, you stopped and chatted with me, giving me all of your attention. You told me that you read my posts and you asked me to tell you more about my advocacy work. We talked about Headache on the Hill and me speaking at RetreatMigraine and Miles for Migraine events. You shared that you wished I wasn't in so much pain, but that you're so proud of who I am and the work that I do. Then, you gave me a hug. Your hugs were so healing, a safe and loving embrace. I am beyond grateful for those moments and that memory with you. I felt seen. Beyond the childhood and familial connection, but rather one adult to another. That connection we had, I will always remember and cherish.

Jordan, I'm so sorry that you were in a place of such despair that you didn't see a way out. I won't get wrapped up in how I imagine you feeling or even what mental health challenges you might've been facing, as it's all conjecture, and truthfully doesn't matter... it won't bring you back.
I love you so much, cousin. 

Final Thoughts, For Now
I am working so hard to process the grief. To acknowledge and express the things I wish were different, without carrying the weight of regret. I will continue to process through the hurt places and grieving potential future outcomes. Learning lessons along the way that I can use to help shape how I move forward. Processing through the grief until what remains is love, cherished memories, and lessons to move forward.

Links:
About Suicide
Resources

"No one ever told me that grief felt so like fear" - C.S. Lewis, A Grief Observed

Friday, July 17, 2020

In Loving Memory of Jenn Tingwald

My dear friend, Jenn Tingwald, passed away unexpectedly on July 2nd.

I’ve been experiencing the full spectrum of grief. I have tried turning to writing, as it’s always been how I process my emotions and experiences. As I’ve found, though, words are often insufficient to express the fullness of universal human experiences… including, grief. This may be a long, bumpy post; but, I want to share some things I’ve written since I heard the news of Jenn’s passing. 

Words in the Moment 
Today, I found out that Jenn Tingwald passed away last night. I don’t know how those words together can be true. I can’t wrap my mind around it. I know that she was in and out of the hospital a lot over the past few months, but how is she gone? When I read of her passing, my heart broke and my body collapsed. We messaged earlier this week. She wasn’t well, but she was a warrior… like she always was. 

How do I even find the words to describe what I’m feeling? 
I’ve lost people in my life, from drifting away to death. 
This loss is different than others. 
Of course, it hurt badly when my grandparents passed, but they were ill for years beforehand. There was much grieving, sometimes for years, as there were a series of losses before the final one. 
This was different. 
This was completely unexpected. 
Jenn had a lot of health challenges, but she always made it through… until she didn’t. 

I know that grief is a process. I know that the waves will continue to come. Waves of disbelief, sorrow, overwhelm. The waves will vary in size and frequency, but they will continue. 

Today, it’s waves of disbelief and overwhelm. I can’t grasp it, and then it swallows me. It’s such a difficult part of being human. All day, I’ve sobbed and keep saying, “I don’t understand.” 

I know that a lot of things I do will remind me of her, as we shared so many ups and downs together. Living with chronic pain (struggles, successes, treatments, disability, etc), Mayo Clinic, advocacy work (including, Headache on the Hill and Miles for Migraine). Right now, that seems overwhelming. I'm reminding myself that each of these is an opportunity to respond with gratitude for our friendship and move forward with courage and perseverance, knowing she's with me in spirit.

Every ounce of me knows that she’s finally out of pain and with our Lord. I know that I’ll carry her with me, as will the many others whose lives she touched during her time on earth. I’m grateful for all of that, truly. 

Letter to Jenn
My dear friend, 
It’s been a week since you passed. I’m still trying to wrap my mind around you not being here. My heart aches and tears continue to stream down my face as waves of sorrow and overwhelm wash over me. I’ve been thinking a lot about you, and about our interactions. 

I remember the first time I met you. We were at the final American Headache and Migraine Association conference in November 2017. We sat next to each other all morning, but neither of us spoke to one another because we were both managing a migraine attack and medication side effects. As we broke for lunch at the end of the conference, we started talking (my mind doesn’t remember clearly if we just started talking or if Dr. Starling introduced us). Either way, we learned each other’s names and chatted a little. Then, we connected through social media, and grew our friendship. I’m so grateful that we didn’t allow the opportunity to meet pass us by. 

You were the first local friend I made, after Jeremy and I moved to Phoenix. I didn’t know how I’d make local friends, given the limitations of this disease; but God crossed our paths and we became close friends quickly. 

Over the past couple years, we were open books with one another, allowing for a depthful connection that transcended the number of days we knew each other… 956 days. I cherish the conversations we shared about faith, advocacy, and the challenges and successes of living with chronic illness. 

You loved fiercely. I think that’s something we have in common. Your love for your family was unquestionable and second only to your love for God. I always enjoyed hearing stories and seeing pictures of your daughter. She is so precious, and I’m grateful that I was able to meet her in-person this March. 

Among other things, I will never forget your generosity and kindness. You always did your best to support and encourage me, despite the challenges you faced. Thank you for that. 

You made a difference in so many people's lives. Amongst the darkness of losing you, your light continues to shine. It's there in the lives you touched. It's undoubtedly you, and it's beautiful. 

It’s been two weeks since you passed. How can that be? My experience of time is warped. I want to tell you that it was such an honor being friends with you. Thank you for always encouraging me to simply be myself and reminding me to speak from my heart. What a beautiful gift. 
Goodbye, for now, my friend. 

Tributes

I was asked to share an overview of Jenn's headache disorders advocacy:
Jenn Tingwald was a fierce advocate for the headache disorders community. She participated in Headache on the Hill multiple years, spoke at two Phoenix Miles for Migraine events, and was featured in a PBS Newshour special that aired in February. Jenn openly shared about her and her daughter’s experiences living with headache disorders, and highlighted the importance of finding your voice and reclaiming your purpose through advocacy.
Jenn’s husband, Aaron, generously provided an opportunity to share a short video with a story about Jenn. I have many, but the one that was on my heart perfectly displays the kind, generous spirit of my dear friend: 
Jenn and I met at a migraine advocacy event in fall 2017 and quickly became friends and fellow headache disorders advocates. Last year (2019), Jenn and I were going to room together for Headache on the Hill. A couple days before the training, she canceled her trip. She desperately wanted to go, but she needed to focus on her health. When a horrible migraine attack knocked me down after my travel day, she tried to coordinate getting heat pads and Epsom salt delivered to me. Despite the challenges she faced, she messaged me throughout my travels and the Headache on the Hill event. She told me she’d be with me in spirit, and I could feel her presence every step of the way. 
Jenn was one of the strongest, most kind-hearted people I’ve ever known. She was a fierce advocate, especially for her daughter. And, she was a faithful prayer warrior. She always encouraged me to be myself and speak from my heart, especially when she knew I was anxious. I know she’ll continue to be with me in spirit, and I’ll hear her voice reminding me, “You’re going to do amazing!” 
For anyone interested: 
“The reality is that you will grieve forever. You will not ‘get over’ the loss of a loved one; you will learn to live with it. You will heal and you will rebuild yourself around the loss you have suffered. You will be whole again but you will never be the same. Nor should you be the same nor would you want to.” - Elizabeth Kubler-Ross and David Kessler

Thursday, November 29, 2018

Step of Faith

As I return to my blog, I've taken some time to read some previous posts that I've written. It has highlighted so much of how I've changed over the years. My journey has been filled with ups and downs, light and darkness, joy and sadness.

My very first blog post, The Battle Begins, was a step of faith that I took during a very raw time in my life. I continued to be open about my journey in subsequent blog posts, and have striven to carry that vulnerability into more of my interactions.

As I would expect happens with most writers, I have drafts of thoughts and ideas that vary from unfinished to simply never posted. Some, I may not return to, but others will be shared on the blog. I don't have the desire, energy, or recollection to recount everything I might've written about over the past couple of years, but there are some experiences and lessons that should be shared.

Photo by chuttersnap on Unsplash
Ultimately, I'm not sure where writing will lead me. I'm taking another step of faith in getting back to
my blog and sharing more of my journey.

If there are any topics that you struggle with in your own journey, feel free to reach out or comment. Sharing our stories and supporting one another along our paths is powerful.

"Faith is taking the first step, even when you don't see the whole staircase." - Martin Luther King, Jr.

Monday, November 26, 2018

Chronic Migraine Warrior Returns

I have been away from my Chronic Migraine Warrior blog for quite some time... a couple years!

Over the past few years, I shifted my energy and focus away from the blog. During that time, I moved to a different state, took a closer look at all aspects of my health, and continued my patient advocacy work. Lots of change and learning!

I feel the nudge to get back to writing... and my blog is here and ready. Let's see what happens!

"Courage, above all, is the first quality of a warrior." - Carl von Clausewitz

Saturday, June 27, 2015

You Are Loved (Don't Give Up)

"You Are Loved (Don't Give Up)" Watch the Josh Groban video below and listen to the lyrics. How does it make you feel? Which lyrics do you find especially inspiring?

What a beautiful song. Such powerful words. 

This song immediately brought to mind my relationship with God. He is always there. He is my strength, my comfort, my guiding light.

As I listened further, I thought of relationships I've grown over the years. I'm blessed to have people in my life that will help me:
when my load feels too heavy,
when I feel unheard or misunderstood,
when I get lost in the pain,
when I feel the light in me has been blown out. 
They are there to help lift me back up... to help me find hope. They remind me to look to my faith for grace, mercy, and hope. And, they hold onto hope, when I struggle to hold on myself. Their love, patience, and grace is beautiful and amazing.

I strive to be that kind of person, as well. 

When you feel invisible, unheard, misunderstood... you are not alone. Reach out. You are loved!

You Are Loved (Don't Give Up) by Josh Groban

Don't give up
It's just the weight of the world
When your heart's heavy
I...I will lift it for you

Don't give up
Because you want to be heard
If silence keeps you
I...I will break it for you

[Chorus]
Everybody wants to be understood
Well I can hear you
Everybody wants to be loved
Don't give up
Because you are loved


Don't give up
It's just the hurt that you hide
When you're lost inside
I...I will be there to find you

Don't give up
Because you want to burn bright
If darkness blinds you
I...I will shine to guide you

[Chorus]

You are loved
Don't give up
It's just the weight of the world
Don't give up
Every one needs to be heard
You are loved

Monday, June 15, 2015

When You Believe

"When You Believe:" Watch and listen to the video of Mariah Carey and Whitney Houston performing "When You Believe," then tell us how it can inspire hope.

During difficult times, it can feel like our prayers fall on deaf ears. We may feel alone or abandoned. We may even question our faith. We may feel like hope is gone.

But, as this song beautifully shares: "when you're blinded by your pain / Can't see the way, get through the rain / A small but still, resilient voice / Says hope is very near"... "though hope is frail, it's hard to kill." 

The Bible reminds us that: "Because you have so little faith. Truly I tell you, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there,' and it will move. Nothing will be impossible for you" (Matthew 17:20).

In the same way that "faith as small as a mustard seed" can move mountains, I believe that even the smallest bit of hope can help light our darkest days. 

Keep praying. Keep the faith. Keep hoping. Keep believing and trusting in God... miracles can happen. 

When You Believe by Whitney Houston

Many nights we've prayed
With no proof anyone could hear
In our hearts, a hopeful song
We barely understood

Now we are not afraid
Although we know there's much to fear
We were moving mountains long
Before we knew we could, oh yes

[Chorus]
There can be miracles when you believe
Though hope is frail, it's hard to kill

Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe

Oh yeah, in this time of fear
When prayer so often proves in vain
Hope seems like the summer birds
Too swiftly flown away
Yet now I'm standing here
My heart so full I can't explain
Seeking faith and speaking words
I never thought I'll say

[Chorus]

They don't always happen when you ask
And it's easy to give in to your fears
But when you're blinded by your pain
Can't see the way, get through the rain
A small but still, resilient voice
Says hope is very near, oh


[Chorus]

You will when you
You will when you believe
Just believe
I believe, I believe
Just believe
You will when you believe

Saturday, June 6, 2015

Song of Hope

Song of Hope: What song gives you hope to hold, despite your Migraines or Headaches and how?

I love music. It can express things that it's otherwise difficult to express.

I've posted a lot about different songs that provide me comfort, inspiration, hope, etc. If you'd like to take a look and hear more, I actually have a blog post specifically for songs of hope: My Playlist: Songs of Hope.

One of the songs on that playlist is the one that I feel most compelled to share today: Stronger by Mandisa.

This song is such a strong reminder that God loves me unconditionally and will never forsake me. He knows the hurt I feel, and He will help me through even the most difficult of times.
'Cause if He started this work in your life / He will be faithful to complete it / If only you believe it / He knows how much it hurts / And I'm sure that He's gonna help you get through this

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future" (Jeremiah 29:11).

Symbol of Hope

Symbol of Hope: What symbol helps give you hope for living with Migraine and Headaches?

There are multiple symbols that help give me hope for living with Migraine and Headaches. But, there is one that stands far beyond all the others.

The cross.

The cross means and reminds me of so many things, including: that I am a cherished child of God, that God loves me so much that He sacrificed His only son (who was raised on the third day), that I have purpose in this life,  that I am never alone, that I have the God of angel armies fighting for me.

The cross points me back to God. My faith in Him is where I find strength, hope, gratitude, and peace.
"I can do all this through him who gives me strength" (Philippians 4:13)

Wednesday, November 13, 2013

Evolution: How Being a Patient Has Changed Me

Today's topic is "Evolution. Write about how being a patient or caregiver has changed you. How have your goals changed? Have your values changed?"

There are so many things that come to mind for this topic. I have changed a lot, since I started living with chronic debilitating pain 5-years ago. I've written quite a lot on the topic of change... here's one that jumps out in my mind:  Change: Life Since the Accident (Jan 6).

Slowing down
I've learned (and am still learning) to slow down. It hasn't been easy, as I was always on the go, before my accident. I planned nearly every hour of my day... man, was I a planner! But, that doesn't work for me now. I have to be mindful of my body's limitations in a way that I never did before. Otherwise, my body may just shut down and/or I later pay a very high price. So, I find my life is a much slower pace than most others, but that's what I need.

Living in the present
I'm learning more and more to simply live in the present moment. It's harder for me to do at some times than others, but I'm much better at doing it than I used to... I still have a way to go, though. When I'm having good moments, I do my best to cherish and enjoy them, regardless of how long they last. When I'm having very painful moments, I do my best to tend to my body and turn my focus on God - thanking Him for what I have, asking for His peace through the storm, praying for others who are experiencing any pain, etc.

Depending on others
I grew up to be an independent woman, and I've always taken pride in that. So, being thrust into a position of truly needing to depend on others was a huge (undesired) lesson in humility, among other things. I still have difficulty with asking for help, but I'm slowly becoming more comfortable with asking for and accepting assistance from others. I think it's an important lesson for everyone - not to depend on others for everything, but to be able to ask for and accept help when needed.
* There's a blog post that I started almost 2.5 years ago regarding independence / dependence... I think I'll work on finishing and posting that in the next few days. 

Gratitude
I find myself filled with gratitude in a different way than I was before. My list of things I'm grateful for includes even the simplest of things that I used to just take for granted. And, as humbling as that can sometimes be, it keeps me focused on the things, big and small, that God has blessed me with.

I have changed
I've become more focused on my priorities, stronger in my faith, more outspoken in health matters (especially concerning justice for those with disabilities), more understanding of others, and more forgiving of myself and others.

Goals have changed
My goals have changed. Sometimes I feel like a failure because I don't have my 5- or 10- (and so on) year plan on the tip of my tongue. My goals aren't SMART (specific, measurable, attainable, relevant, time-bound), like I was trained to believe is necessary. Perhaps it is necessary, but I don't feel a specific drive or calling of something to do in my life right now. And, while that sometimes makes me extremely anxious and like something must be wrong with me, I'm doing my best to trust that God has a plan for me.

Overall, even though I don't have SMART goals, I do feel more focused on a clear life purpose: to faithfully follow God, allowing Him to work in and through me wherever I am and however He desires. Now, that's not to say that I don't struggle along the way. I don't have any clue what I'm supposed to be doing with my life, but I'm doing my best to root myself in the One who does know.

This post was written as part of the National Health Blog Posting Month (NHBPM). Other bloggers will share their posts on this FB page.

Tuesday, September 17, 2013

Do You Love Me?

I have to be honest. It's been a long time since I've felt... I mean, really felt the spirit move in and through me. But, at this moment, despite the throbbing pain of a migraine that's ramping up and knowing that I'm going to be sidelined for the majority of the day, I feel alive! I feel the spirit churning in me, and pushing to come out. So, I turned on the computer to let the words flow through my fingers.

I have been feeling guilty and have been very hard on myself for a really long time. You see, I haven't been to church in longer than I care to admit - besides a couple visits here and there, it's probably been a few years now. It breaks my heart, as church and my family / church family (my family and I are members of the same church) has always been a constant rock in my life. But, I have a lot of difficulty with many aspects of the church-going experience, so here I am.

I miss it. I miss being surrounded by others that love Christ. I miss the Scripture, the songs, the sermons, the community. I miss feeling His presence.

My church has been streaming podcasts of the weekly sermons for a while now. I started listening to them, when they first started, but I haven't stayed disciplined in listening to them. For whatever reason, I decided to pull one up this morning and listen to it. Where should I start? At the beginning? The most recent? So, I just kinda randomly chose one... it ended up being the sermon from May 5, 2013. Wow!

The sermon speaks to how Jesus Christ came to simplify our lives and our faith. We are called as God's people to live and love simply.

I've been thinking a lot about this idea of living simply, as I definitely do not. I over-complicate and over-analyze my life so much!

We over-complicate life, and Christ came to simplify it. We over-complicate our relationship with God, and Christ wants it more simple. We over-complicate forgiving other people (perhaps most of all, ourselves), loving other people... and it's all really simple. Christ came so that all are forgiven and loved. All we have to do is accept it and offer it to others. Simple. But, simple is not easy. A simple life of faith is not easy.

It's easier to only love and forgive certain people (for example, people that think or believe what we believe), but it's simpler to love and forgive everyone. And, we're called, as God's people, to love and forgive everyone - just as God loves and forgives us, unconditionally. It's not easy to love everyone unconditionally, but it's simpler.

Take, for example, Simon Peter. Simon Peter publicly and blatantly denies knowing Jesus three times (John 18:15-27). In a stark difference from the rules and regulations of the day to cleanse and repent for denying God, Jesus responds by asking a simple question... "Do you love me?" (John 21:15-17).

In order to be made holy and righteous, and be reconnected and back in relation with God, all He asks is, "Do you love me?" The only other thing we're asked to do is to simply go love and forgive others the way we've been loved and forgiven by God.

No matter how much we've messed up, how far we've strayed, what we've done... if we want to be forgiven by God and be in a relationship with God, all we have to do is answer this question:
Do you love Me, and will you go and love other people the way I've loved you?  ~God
Wow! What a huge release of so much guilt, disappointment, and hate that I've held toward myself. There's nothing difficult that I have to do to try to make things right between God and me. I love God, and I do my best to share His love and forgiveness with others. I feel like not being able to make it to church has somehow stifled my relationship with Him, but maybe He's growing me in different ways right now. I do hope to be able to rejoin my church community in weekly worship and service, but I'm trying to find peace in doing what I can right now... growing my relationship with God from where I am, knowing that the Lord of All has the reigns in my life.

All we have to do is accept God's unconditional love and forgiveness in our lives, and then go offer it to other people. That's it. So simple! 

Monday, September 16, 2013

A Life-Affirming Visit

You know those amazing, life-affirming visits with someone (be it a friend or a stranger), where you leave feeling that your soul has been refreshed / renewed?

I had one of those Sunday night. I had a chance to visit with a long-time friend of the family, who I only get to see every four or five years. She happened to be in town for a few days, and I (thankfully) was feeling well enough to visit a bit with her and some of my family.

She and I chatted with one another for a little while, and I feel that we connected in a special way. She shared with me how she saw me before the chronic migraines (very active and busy, an intellectual, etc), and then recognized and allowed me to talk about the difficulties that have come with learning to live life with so much pain and so many limitations. She said she knows I've always been determined and strong, and that she knows I'll do my best to be and live as well as possible.

She shared bits of wisdom that she's learned over a lifetime of experiences... bits of wisdom that seem so simple and basic, but are truly life-changing:
  • Listen carefully to your body.
  • Do what feels right to and for you (call it your gut, instinct, or just a feeling).
  • Be okay / comfortable with the decisions you make.
  • What others say to / about you is about them, not you.
  • Don't spend precious time and energy on wasteful things. 
  • such as, thinking or worrying about... what others say to/about you, expectations of self and others (what you should be doing), what may or may not happen, and other things that are out of our control.
  • There is meaning and purpose in life, even when it doesn't feel like there is.
  • The faith that we gain during times of struggle are priceless.

I'm sure there are other things that'll keep coming to mind, as the words shared between us play in my mind further. There were aspects of this journey that I haven't talked about in quite a long time (like identifying myself with my intellect, and the loss of that when I struggled with and then decided not to continue graduate school). It was interesting for me to see what I've dealt and come to terms with, and what is still a little raw to talk about. I know that this is all a journey, and it was nice to share parts of my journey with this friend.

I feel validated and better understood. I also feel a renewed sense of hope and direction that feels great!

I count myself so blessed to have this person in my life, and that she was willing to spend some time sharing with and really listening to me. My heart is filled with gratitude!

Wednesday, July 17, 2013

It's Been A While & Neck / Shoulder Pain

I've been away... for quite a long time. I apologize for my absence. There are many things that have been happening, some of which are still being worked out. There's a lot that I'd like to share with you guys. I definitely want to get back to blogging more soon, but it may still be a little bit before I can do that. We'll see how things go... so, please stay tuned. 

At the beginning of April, I started having increasingly severe neck pain; and by the end of the month, my right shoulder started to ache deeply (in addition to the severe neck pain).

The intense neck and shoulder pain really broke me down, making me feel like I was just falling apart. I couldn't find any relief or peace. Everything came to a head, so I went to the doctor to try to help with the severe neck pain (stiffness to the point that I couldn't turn my head to the left), right shoulder pain, tingling and numbness in several fingers... it was bad.

Here's what I wrote on May 3, 2013:
The pain type and intensity are eerily similar to right after the car accident in '08 (at least as much as I can recall). I feel overwhelmed with A LOT of thoughts and emotions that race through me. The pain has made it hard to write or type... even texting. It's re-closing my world, and I don't know what to do. I keep reminding myself that I've grown so much since right after the accident, but I don't know if I can do all this again. 
I went to the doctor today. (5/3). Long story short(er), the severe neck / shoulder pain (and subsequent tingling and numbness in my right hand) could be caused by a few different things - could be muscle spasms squeezing the nerve, bursitis, lasting effects from my car accident, a muscle tear, a bulging disc, etc. It's complicated by the fact that the medical test to best narrow it down is an MRI, which I can't have because of my neurostimulator. My doctor said that there's pain in the rotator cuff, so we might be able to get rid of most of the pain and then just have to deal with the cuff. Or, meds + rest + ice could take care of it. There's so many different possible causes, treatments, and outcomes.
So, I was on muscle relaxants for a couple weeks, and took NSAIDs for a month. I also rested and iced the area. Thankfully, all of this helped, and I've gotten back to my normal levels of neck and shoulder stiffness and pain... which is still pretty bad, but no where near as horrible as it was then (and no tingling / numbness).

During this very difficult and painful time, I reached out to a dear friend, who offered me hope and encouragement. She reminded me of God's promises:
"'For I know the plans I have for you,' declares the Lord, 'plans to prosper you and not to harm you, plans to give you hope and a future'" (Jeremiah 29:11).
She also reminded me that even when we wonder what God's purpose is for us, when we're unable to write, talk, or even pray most days... that what matters most to God is His relationship with each of us... and, even though we may want more (to be able to do more)... He only longs for us to be in and with Him.

So, when I'm hurting so badly that I can't really do much of anything and I feel worthless / helpless / etc... as long as I focus on being in the moment with Him, I'm exactly where He wants me to be... and that's what I cling to.

[Please stay tuned for more updates.]

Wednesday, June 27, 2012

Migraine Awareness Month Blogging Challenge #27: In My Head & Heart

There are several people that inspire me to keep trying and not give up, despite my Migraines.

My Husband - Jeremy has always been a huge support and encouraging partner. He tries his best to understand my Migraines. He goes with me to doctor appointments. He's truly seen me at my worst... and he loves me anyway.

He knows that in my heart, I don't want to give up... and he reminds me of that. He cheers me on, even when the achievement is seemingly minor. He helps me so much (with tasks around the house, etc), but he encourages me to do what I need to so that I can live the best quality life I can with this disease (sometimes that means challenging myself to do something I haven't done in a while). He doesn't make me feel bad for my memory problems, my inability to help more around the house, having to cancel plans at the last minute, and so many other limitations I now have.

He helps me hold onto hope, and I'm so very grateful that he's my life partner.

My Family - My family has always been behind me, supporting and encouraging me. I lived with my parents for a little while following the accident, so they've seen me through some very dark times. I don't really remember much about the months after the accident (I literally had to write things down as they happened, or they'd be gone forever), but I know that I couldn't have made it through without them.

My mom went with me to all of my doctor appointments for at least the first year after the accident, and always asks for updates on how appointments went. My dad is always such a calming presence in my life, and I know that he knows and understands me in ways that many others don't. My sister has also been a so supportive and encouraging, and it means the world to me.

My family is my solid foundation and constant in the midst of life's storms, and I'm so very blessed to have them behind me no matter what.

My Friends - I rarely communicate with most of my friends. But, I do have a friend or two that have taken some steps to try to better understand Migraine and my experience living with it - and I'm so grateful that they have. They don't mind if I need to keep the lights low, keep my sunglasses on, and they show compassion (but, thankfully, not pity). I know that they're busy with their own lives, but I cherish the times I get to chat with them (in person, on the phone, texts, email, snail mail - any way that we can communicate). 

Online support communities
My Online Friends - I've met some dear friends in the online world, most that I probably never would've been blessed to know without the common link of Migraine. They have provided me strength, support, hope, prayers, and friendship. I can always count on them to understand and accept me the way that I am. They've helped me through some of the roughest times; but they're also there to cheer me on, celebrate achievements (no matter how small), and to offer words of kindness and love.

My Stubborn Self - I've always been a persistent and determined person. I won't stop trying to find relief. But, meanwhile, I'm trying to create and maintain a life that includes living within my current limitations. I'll never give up hope - I may have trouble holding on sometimes, but I have a support system that will hold onto hope when it's slipping from me.

My Faith / My God - I put up a wall and was so angry with God for some time after my accident. But, at some point, I came around and have been trying to trust Him more (this isn't to say that I never feel frustrated or angry with God, but it's much less frequently and shorter-lived).

God has provided for me / us in so many different ways. He provided for us financially through times with mounting medical costs and Jeremy being unemployed. He continues to give me the strength to make it through each moment. He blesses me in so many different ways, despite my chronic Migraines.

I don't understand why God brought me to this place of chronic pain. But, I'm trusting Him to work in and through me. I can't say that I'm happy to be a chronic Migraineur, but it's bringing me closer to my God and some of my family... it's made me slow down and live more "in the moment / in the now"... it's helping me to embrace and cherish the good moments, and try hard to let go of the moments that try to consume me... and it's reminding me to be filled with gratitude, even for simple or small blessings.

I believe that sometimes the greatest blessings are born out of brokenness.

This post was written as part of the Migraine Awareness Month Blogging Challenge (MAMBC), which is initiated by www.FightingHeadacheDisorders.com and the National Migraine Awareness Month is initiated by the National Headache Foundation (NHF).

Tuesday, June 12, 2012

Migraine Awareness Month Blogging Challenge #12: Self-Care

Patients For A Moment (PFAM) is a patient-centered blog carnival to build connections within the community of people who blog about illness, disease, and disability. Maria, at My Life Works Today!, is hosting this edition of the PFAM blog carnival. The topic is: "Self-care is..."

Self-care is...
eating-well, time-alone, cook, massage, letters, blog, write, music, journal, scrapbook, relax, walk, courage, persistent, adaptable, flexible, understanding, empathy, open, forgiving, ask, help, accepting, research, strength, peace, hope, prayer, faith, loving, friends, family, say-"no", nurture, cherish, gratitude, support, soul, embrace, collaborate, sharing, listening
There are several different categories here, but there's one that really stands out:
Relationships - with God, self, family, friends
Relationships with others can be a very important part of self-care, but not to the detriment of your relationship with God and with yourself. I know that I have trouble remembering this sometimes, but it's something I'm working on because it's so crucial to my self-care.

This post was written as part of the Migraine Awareness Month Blogging Challenge (MAMBC), which is initiated by www.FightingHeadacheDisorders.com and the National Migraine Awareness Month is initiated by the National Headache Foundation (NHF).

Monday, April 16, 2012

Inspirational Pinboard

Today's challenge is to share 3 things from my Pinterest board. I have definitely enjoyed using Pinterest. I've been able to find and try new recipes, and I enjoy broadening my creative side by seeing many of the do-it-yourself projects that others are doing.

I'm struggling with my head today (after a bad migraine yesterday), so today's post is going to have to be short. Here are some inspirational words that help me through these difficult times.






This post was written as part of the Health Activist Writer's Awareness Challenge (HAWMC).

Friday, April 13, 2012

Things I Need & Love

Today's challenge is to write about 10 things I couldn't live without... for example, if I was stranded on an island. Well, living with chronic pain / illness can actually sometimes feel like being alone on a stranded island. My world is primarily within the walls of my apartment. I venture out as much as I can, but I spend the vast majority of my time here.

So, the things I need and want in my home now are the things I would need and want if I was stranded on an island. For this blog post, I'm going to change the prompt a bit. Here are 3 different lists: what I need / love the most, what I'd like to have, and what makes life worth living.

5 things that I need / love the most:
  1. The unconditional love of our Father in heaven.
  2. The strength and love of my amazing husband.
  3. The love and support of my parents / family.
  4. The encouragement and support of my (online) friends.
  5. The hope that there will be days with less pain in the future.
5 things that I'd like to have:
  1. A journal and pen.
  2. Scrapbooking supplies.
  3. Cell phone with internet access, so I can keep in touch with the outside world.
  4. A soft pillow / blanket / bed.
  5. Migraine meds.
5 things that make life worth living:
  1. Faith
  2. Hope
  3. Love
  4. Health
  5. Laughter
This post was written as part of the Health Activist Writer's Awareness Challenge (HAWMC).

Wednesday, April 11, 2012

My Playlist: Theme Song(s)

Today's challenge was to give a theme song to my blog and/or health focus. I'm not really sure I can pick a single song... so, let's just see where my thoughts lead me today...

Music is so powerful! It truly can help us to give words to and express so many different emotions that we simply cannot explain or express any other way. So many memories are tied to specific songs, and hearing even just a few notes of the song can bring up such strong emotion. Music can help us express pain, anger, sadness... as well as pleasure, happiness, and joy... and everything in between.

I have many different types of music that I like to listen to, depending on my mood and what's going on in my life. Some of the songs that have moved me can be found on my other blog, Unfolding the Rosebud (some of the ones listed on that blog are also found below).

I previously made a playlist with songs of hope... you can check it out here, My Playlist: Songs of Hope. The playlist includes many songs that I enjoy listening to often. They have words of hope and encouragement. I hope you'll take some time to listen to some of those songs, but I'd like to share some different ones in this post.

Behind the Scenes by Francesca Battistelli
This song really speaks to each and every one of us. We all have so much more going on than what others can see from the outside.
Things aren’t always what they seem / You’re only seeing part of me / There’s more than you could ever know / Behind the scenes
 I find this especially true for those living with chronic pain / illness:
You may think / I’m just fine / How could anything / Ever be out of line? 
Sometimes I can’t see / Anything / Through the dark / Surrounding me / And at times I’m unsure / About the ground / Beneath my feet / If it’s safe and sound
It's important that we be compassionate to one another because every single one of us is fighting some sort of battle. And, we can have comfort in know that
When it’s hard to find hope in the unseen / I have peace in knowing it will find me 

I always have so many questions stirring in me, and this song speaks so well to that. I don't slow down well. I don't like that things take time, but it's the way things are... and it's more the way my life is now than it ever was before the accident. Everything takes much more time than before. It's frustrating, and it makes me wonder 'why.' There are so many questions, but I must always keep my faith in the Lord.

"Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance." (James 1:2-3)
I wanna know why pain makes me stronger / I wanna know why good men die / Why am I so afraid of the dark, / But I stray from the light?
And I wonder why / Sometimes the truth ain’t easy to find / I wanna know all the answers / But I’m learning that / These things take time

This song speaks to the fragile nature of our human form. But, we're reminded that we're shaped by the "light we let through us," which is so true. Jesus tells us that “I am the light of the world. Whoever follows me will never walk in darkness, but will have the light of life” (John 8:12).
We may shine, we may shatter... / We are fragile, we are human / We are shaped by the light we let through us / But we break fast 'cause we are glass' / Cause we are glass
It can be difficult to let others in, letting them see who you really are. But we all are fragile and imperfect. We should try not to judge one another, as we all bear our own burdens. I'll be the first to admit that I've never been very easy to get to know... I've gotten pretty good at holding others at arm's length, not letting them see me. But, I've been more open and honest, since my accident (at least here on my blog, and with those that I feel truly care and are trying to understand, rather than judge). I feel like sharing my experiences (both good and bad) is cathartic for me, and could help others. So,
I'll let you look inside me / Through the stains and through the cracks... / But try not to judge me / 'Cause we've walked down different paths

I absolutely love this song! Both the song and video are very powerful. I think the message is great for everyone that is in a dark place in their life. There is still hope, and you can battle through and rise higher than ever... "like a skyscraper."
You can take everything I have / You can break everything I am / Like I'm made of glass / Like I'm made of paper / Go on and try to tear me down / I will be rising from the ground / Like a skyscraper / Like a skyscraper
In the video, she's barefoot, making her way through a barren desert. I think the imagery is right on. In the midst of dark times, it can often feel like we're alone... trying to make our way through a barren land. But, we can make our way through it, and rise to new heights. I think skyscrapers are truly marvelous...

I Won't Let Go by Rascal Flatts
I'll leave you with a song that always leaves me in tears... but that also gives me great peace and comfort (thanks, again, for sharing this song with me, my 'lil dove).

Perhaps this would be a good song for my blog's theme song... I think this song is so beautiful! Even though I'm in the midst of my own storm, I want to help make sure that others know that they're not alone either.
It’s like a storm / That cuts a path / It breaks your will / It feels like that / You think you're lost / But you're not lost / On your own / You're not alone 
There are others out there that are facing similar challenges. And, even if I can't completely understand what you're going through...
I will stand by you / I will help you through / When you’ve done all you can do / And you can’t cope / I will dry your eyes / I will fight your fight / I will hold you tight / And I won't let go

This post was written as part of the Health Activist Writer's Awareness Challenge (HAWMC).
Disclaimer: Nothing on this blog is intended as medical or legal advice.

What I write on this site is my own, and if it is someone else's, I take special care to attribute it to the original author. So, please don't use any of my material without proper attribution or permission. Thanks.