tag:blogger.com,1999:blog-4314571900243142661.post1311308119619363818..comments2024-01-08T15:14:08.389-07:00Comments on Chronic Migraine Warrior: Expectations and RecoveryJamiehttp://www.blogger.com/profile/12251221896260997647noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4314571900243142661.post-55707863879619083822011-01-26T22:24:28.335-07:002011-01-26T22:24:28.335-07:00I haven't ready your blog for awhile...I didn&...I haven't ready your blog for awhile...I didn't realize you'd gotten a stimulator. How exciting! Guess I'd better learn to keep up with these things :)<br /><br />When I got my stimulator, I know it took me months of trial and error with the settings to figure out what exactly worked for my pain. It can be really frustrating, I won't lie. And this winter I've gone through a weird period where my normal settings aren't working for me. They're almost making the pain worse. I've had to re-tweak and re-learn what works on my pain. I have a feeling this will be an ongoing process as long as I have this thing.<br /><br />And I hear ya about other people expecting you to be "cured." Any time I have a headache anymore people always say "what? The stimulator isn't working anymore?" It's just not that black and white.<br /><br />Hang in there. The relief you'll get will be worth it in the end.Bannerhttps://www.blogger.com/profile/10411396685109840881noreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-75545256407006136232011-01-12T04:27:33.939-07:002011-01-12T04:27:33.939-07:00Jamie, thank yo for the update. Been praying for ...Jamie, thank yo for the update. Been praying for you dear one. (((((Jamie))))God Whispershttps://www.blogger.com/profile/04602247548236421038noreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-48543964580263173012011-01-10T17:21:07.223-07:002011-01-10T17:21:07.223-07:00Hi Jamie,
I have been thinking a lot about you. I...Hi Jamie,<br /><br />I have been thinking a lot about you. It was so wonderful to meet you and your husband in person while we were all in Texas. You are such a sweetie! I am so sorry that you have to deal with struggles of others. People truly do not understand migraine disease and everything we have to go through to just have freeddom from the pain that we suffer everyday. Hey, I am always here for you if you feel like chatting on the phone. Also, remember that you are in my thoughts and prayers.<br /><br />HollyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-75545369986671617272011-01-10T09:05:03.365-07:002011-01-10T09:05:03.365-07:00Chronic pain is so complicated and so very difficu...Chronic pain is so complicated and so very difficult. I had my occipitial nerve decompressed about a year a half ago. I remember the surgeon telling me that recovery was 2 weeks and certainly those first two weeks were the ugliest but it was several months before I felt like I was through the recovery process. It was during that time that I learned the surgeon spoke about 2 weeks because that was how long it took the incision. But the body needed so much longer to heal. <br /><br />I'm sorry you are facing all these struggles with expectations. I will pray for you and those around you.Migrainistahttps://www.blogger.com/profile/05473496432554201124noreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-83346410149978725412011-01-09T21:31:30.497-07:002011-01-09T21:31:30.497-07:00Oh Jamie, that sounds so hard. I've been prayi...Oh Jamie, that sounds so hard. I've been praying for you - for the Spirit's guidance through the healing process. I'll add a few prayers for the people around you because they need to be as patient as you do right now, and that's really difficult.<br /><br />When I had my occipital nerve block in July, I was SO frustrated when friends and family would say things like "Oh good, now you won't have pain anymore." Uh, no. I won't have pain for maybe six months, if I'm lucky, less if I'm like most patients. <br /><br />They just didn't understand that one injection in my occipital nerve was not going to rid me of pain for the rest of my life. I wanted to enjoy every day I had without severe pain, but instead I ended up explaining the procedure to half the people I spoke with. ARGH!! <br /><br />I totally understand that frustration, and I hope it gets easier for you. Really soon.Suehttps://www.blogger.com/profile/03407981987874669303noreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-31819430061355669962011-01-07T23:31:10.071-07:002011-01-07T23:31:10.071-07:00They talked to me some about it, and I'm tryin...They talked to me some about it, and I'm trying to remember to think of it long-term. It's just hard, sometimes. I, too, was told that I'd need to have mine on 24/7. I might call the doctor's office next week. They said the incisions are all healing very well, but the recovery time just varies so greatly between patients (from weeks to months). Thanks for sharing a little of your timeline, Winny... it's helpful to hear another's experience. Do you just have the Occipital Nerve Stimulator (2-leads)? Thanks for the encouragement.Jamiehttps://www.blogger.com/profile/12251221896260997647noreply@blogger.comtag:blogger.com,1999:blog-4314571900243142661.post-25757922022044035782011-01-07T20:19:17.855-07:002011-01-07T20:19:17.855-07:00I do hope your surgeon or the stimulator people ta...I do hope your surgeon or the stimulator people talked with you about how these thing heal and work long term.<br /><br />I was told it takes a couple of months to "scar" in the paddles or leads. They conduct just a little better then.<br /><br />I was told that for me (with a constant headache) I would have to have mine on 24/7 and I would not start to have consitently good results until the third month.<br /><br />I saw real and significant reduction of pain at the 6 month level.<br /><br />Don't get discouraged by people who don't understand. If you had gotten a knee replacement I suppose they would want you to run a marathon the next week??WinnyNinny PooPoohttps://www.blogger.com/profile/13237156887425609665noreply@blogger.com